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Currently accepted at: JMIR Cancer

Date Submitted: Oct 31, 2018
Open Peer Review Period: Nov 3, 2018 - Dec 29, 2018
Date Accepted: May 1, 2019
(closed for review but you can still tweet)

This paper has been accepted and is currently in production.

It will appear shortly on 10.2196/12593

The final accepted version (not copyedited yet) is in this tab.

The final, peer-reviewed published version of this preprint can be found here:

Oncofertility decision support resources for women of reproductive age: a systematic review

Speller B, Micic S, Daly C, Pi L, Little T, Baxter N

Oncofertility decision support resources for women of reproductive age: a systematic review

JMIR Cancer 2019;5(1):e12593

DOI: 10.2196/12593

PMID: 31199289

PMCID: 6592478

Oncofertility decision support resources for women of reproductive age: a systematic review

  • Brittany Speller; 
  • Selena Micic; 
  • Corinne Daly; 
  • Lebei Pi; 
  • Tari Little; 
  • Nancy N Baxter

ABSTRACT

Background:

Cancer treatments have the potential to cause infertility among women of reproductive age. Many cancer patients do not receive sufficient oncofertility information or referrals to reproductive specialists prior to beginning cancer treatment. While health care providers cite lack of awareness on the available oncofertility resources, the majority of cancer patients utilize the Internet as a resource to find additional information to supplement discussions with their providers.

Objective:

To identify and characterize existing oncofertility decision support resources for women of reproductive age with a diagnosis of any cancer.

Methods:

Five databases and the grey literature were searched from 1994 to 2018. The developer and content information for identified resources was extracted. Each resource underwent a quality assessment.

Results:

Thirty-one open access resources including four decision aids and 27 health educational materials were identified. The most common fertility preservation options listed in the resources included embryo (100%), egg (100%), and ovarian tissue (97%) freezing. Notably, approximately one-third (35%) contained references and five (16%) had a reading level of grade 8 or below. Resources were of varying quality; two decision aids from Australia and the Netherlands, two booklets from Australia and the United Kingdom, and three websites from Canada and the United States rated as the highest quality.

Conclusions:

This comprehensive review characterizes numerous resources available to support patients and providers with oncofertility information, counseling, and decision-making. More focus is required to improve the awareness and the access of existing resources among patients and providers. Providers can address patient information needs by leveraging or adapting existing resources to support clinical discussions and their specific patient population. Clinical Trial: NA


 Citation

Please cite as:

Speller B, Micic S, Daly C, Pi L, Little T, Baxter N

Oncofertility decision support resources for women of reproductive age: a systematic review

JMIR Cancer. (forthcoming/in press)

DOI: 10.2196/12593

URL: https://preprints.jmir.org/preprint/12593

PMID: 31199289

PMCID: 6592478

Per the author's request the PDF is not available.

© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.