This paper is in the following e-collection/theme issue:

Digital Health, Telehealth and e-Innovation in Clinical Settings (340) Clinical Information and Decision Making (1315)

Published on in Vol 1, No 2 (2012): Jul-Dec

Standardization of Questions in Rare Disease Registries: The PRISM Library Project

Standardization of Questions in Rare Disease Registries: The PRISM Library Project

Standardization of Questions in Rare Disease Registries: The PRISM Library Project

Authors of this article:

Rachel Lynn Richesson1 ;   Denise Shereff2 ;   James Everett Andrews3
Article Authors Cited by (1) Tweetations (1) Metrics

Journals

  1. Cavero-Carbonell C, Gras-Colomer E, Guaita-Calatrava R, López-Briones C, Amorós R, Abaitua I, Posada M, Zurriaga O. Consensus on the criteria needed for creating a rare-disease patient registry. A Delphi study. Journal of Public Health 2016;38(2):e178 View