Published on in Vol 3, No 3 (2014): July-September
Journals
- Rieckmann P, Centonze D, Elovaara I, Giovannoni G, Havrdová E, Kesselring J, Kobelt G, Langdon D, Morrow S, Oreja-Guevara C, Schippling S, Thalheim C, Thompson H, Vermersch P, Aston K, Bauer B, Demory C, Giambastiani M, Hlavacova J, Nouvet-Gire J, Pepper G, Pontaga M, Rogan E, Rogalski C, van Galen P, Ben-Amor A. Unmet needs, burden of treatment, and patient engagement in multiple sclerosis: A combined perspective from the MS in the 21st Century Steering Group. Multiple Sclerosis and Related Disorders 2018;19:153 View
- Mazanderani F, Hughes N, Hardy C, Sillence E, Powell J. Health information work and the enactment of care in couples and families affected by Multiple Sclerosis. Sociology of Health & Illness 2019;41(2):395 View
- Risson V, Ghodge B, Bonzani I, Korn J, Medin J, Saraykar T, Sengupta S, Saini D, Olson M. Linked Patient-Reported Outcomes Data From Patients With Multiple Sclerosis Recruited on an Open Internet Platform to Health Care Claims Databases Identifies a Representative Population for Real-Life Data Analysis in Multiple Sclerosis. Journal of Medical Internet Research 2016;18(9):e249 View
- O’Donnell J, Jelinek G, Gray K, De Livera A, Brown C, Neate S, O’Kearney E, Taylor K, Bevens W, Weiland T. Therapeutic utilization of meditation resources by people with multiple sclerosis: insights from an online patient discussion forum. Informatics for Health and Social Care 2020;45(4):374 View
- Baeza-Yates R, Sangal P, Villoslada P, Fasano A. Burden of neurological diseases in the US revealed by web searches. PLOS ONE 2017;12(5):e0178019 View
- Reen G, Silber E, Langdon D. Multiple sclerosis patients' understanding and preferences for risks and benefits of disease-modifying drugs: A systematic review. Journal of the Neurological Sciences 2017;375:107 View
- Rahn A, Köpke S, Backhus I, Kasper J, Anger K, Untiedt B, Alegiani A, Kleiter I, Mühlhauser I, Heesen C. Nurse-led immunotreatment DEcision Coaching In people with Multiple Sclerosis (DECIMS) – Feasibility testing, pilot randomised controlled trial and mixed methods process evaluation. International Journal of Nursing Studies 2018;78:26 View
- Babac A, Litzkendorf S, Schmidt K, Pauer F, Damm K, Frank M, Graf von der Schulenburg J. Shaping an Effective Health Information Website on Rare Diseases Using a Group Decision-Making Tool: Inclusion of the Perspectives of Patients, Their Family Members, and Physicians. Interactive Journal of Medical Research 2017;6(2):e23 View
- Colombo C, Confalonieri P, Rovaris M, La Mantia L, Galeazzi P, Silena Trevisan , Pariani A, Gerevini S, De Stefano N, Guglielmino R, Caserta C, Mosconi P, Filippini G. The IN-DEEP project “INtegrating and Deriving Evidence, Experiences, Preferences”: a web information model on magnetic resonance imaging for people with multiple sclerosis. Journal of Neurology 2020;267(8):2421 View
- Giunti G, Mylonopoulou V, Rivera Romero O. More Stamina, a Gamified mHealth Solution for Persons with Multiple Sclerosis: Research Through Design. JMIR mHealth and uHealth 2018;6(3):e51 View
- Mauseth T, Hjälmhult E. Adolescents' experiences on coping with parental multiple sclerosis: a grounded theory study. Journal of Clinical Nursing 2016;25(5-6):856 View
- Reen G, Silber E, Langdon D. Interventions to support risk and benefit understanding of disease-modifying drugs in Multiple Sclerosis patients: A systematic review. Patient Education and Counseling 2017;100(6):1031 View
- Kantor D, Bright J, Burtchell J. Perspectives from the Patient and the Healthcare Professional in Multiple Sclerosis: Social Media and Patient Education. Neurology and Therapy 2018;7(1):23 View
- Filippini G, Del Giovane C, Clerico M, Beiki O, Mattoscio M, Piazza F, Fredrikson S, Tramacere I, Scalfari A, Salanti G. Treatment with disease-modifying drugs for people with a first clinical attack suggestive of multiple sclerosis. Cochrane Database of Systematic Reviews 2017;2017(4) View
- Synnot A, Hawkins M, Merner B, Summers M, Filippini G, Osborne R, Shapland S, Cherry C, Stuckey R, Milne C, Mosconi P, Colombo C, Hill S. Producing an evidence‐based treatment information website in partnership with people affected by multiple sclerosis. Health Science Reports 2018;1(3) View
- Lavorgna L, Lanzillo R, Brescia Morra V, Abbadessa G, Tedeschi G, Bonavita S. Social Media and Multiple Sclerosis in the Posttruth Age. Interactive Journal of Medical Research 2017;6(2):e18 View
- Sillence E, Hardy C, Briggs P, Harris P. How do carers of people with multiple sclerosis engage with websites containing the personal experiences of other carers and patients?. Health Informatics Journal 2016;22(4):1045 View
- Bakker C, Stephenson C, Stephenson E, Chaves D. Public Funding and Open Access to Research: A Review of Canadian Multiple Sclerosis Research. Journal of Medical Internet Research 2017;19(2):e52 View
- Kimmerle J, Bientzle M, Cress U. Personal Experiences and Emotionality in Health-Related Knowledge Exchange in Internet Forums: A Randomized Controlled Field Experiment Comparing Responses to Facts Vs Personal Experiences. Journal of Medical Internet Research 2014;16(12):e277 View
- Apolinário-Hagen J, Menzel M, Hennemann S, Salewski C. Acceptance of Mobile Health Apps for Disease Management Among People With Multiple Sclerosis: Web-Based Survey Study. JMIR Formative Research 2018;2(2):e11977 View
- Sun Y, Zhang Y, Gwizdka J, Trace C. Consumer Evaluation of the Quality of Online Health Information: Systematic Literature Review of Relevant Criteria and Indicators. Journal of Medical Internet Research 2019;21(5):e12522 View
- Colombo C, Filippini G, Synnot A, Hill S, Guglielmino R, Traversa S, Confalonieri P, Mosconi P, Tramacere I. Development and assessment of a website presenting evidence-based information for people with multiple sclerosis: the IN-DEEP project. BMC Neurology 2016;16(1) View
- Rahn A, Riemann-Lorenz K, Alegiani A, Pust G, van de Roemer A, Schmitz L, Vettorazzi E, Köpke S, Heesen C. Comprehension of confidence intervals in audio-visual patient information materials for people with multiple sclerosis (COCO-MS): A web-based randomised controlled, parallel group trial. Patient Education and Counseling 2021;104(5):1132 View
- Rahn A, Solari A, Beckerman H, Nicholas R, Wilkie D, Heesen C, Giordano A. “I Will Respect the Autonomy of My Patient”. International Journal of MS Care 2020;22(6):285 View
- Ma D, Zuo M, Liu L. The Information Needs of Chinese Family members of Cancer Patients in the Online Health Community: What and Why?. Information Processing & Management 2021;58(3):102517 View
- Ben-Zacharia A, Bethoux F, Volandes A. Self-Perceived Knowledge and Comfort Discussing Palliative Care and End-of-Life Issues among Professionals Managing Neuroinflammatory Diseases. Journal of Palliative Medicine 2021;24(5):725 View
- Reen G, Silber E, Langdon D. Improving MS patients’ understanding of treatment risks and benefits in clinical consultations: A randomised crossover trial. Multiple Sclerosis and Related Disorders 2021;49:102737 View
- Rahn A, Wenzel L, Icks A, Stahmann A, Scheiderbauer J, Grentzenberg K, Vomhof M, Montalbo J, Friede T, Heesen C, Köpke S. Development and evaluation of an interactive web-based decision-making programme on relapse management for people with multiple sclerosis (POWER@MS2)—study protocol for a randomised controlled trial. Trials 2021;22(1) View
- Wollmann K, der Keylen P, Tomandl J, Meerpohl J, Sofroniou M, Maun A, Voigt-Radloff S. The information needs of internet users and their requirements for online health information—A scoping review of qualitative and quantitative studies. Patient Education and Counseling 2021;104(8):1904 View
- Liu L, Shi L. Does the ownership of health website matter? A cross-sectional study on Chinese consumer behavior. International Journal of Medical Informatics 2021;152:104485 View
- Liu L, Shi L. Chinese Patients’ Intention to Use Different Types of Internet Hospitals: Cross-sectional Study on Virtual Visits. Journal of Medical Internet Research 2021;23(8):e25978 View
- Bevens W, Reece J, Jelinek P, Weiland T, Nag N, Simpson-Yap S, Gray K, Jelinek G, Neate S. The feasibility of an online educational lifestyle program for people with multiple sclerosis: A qualitative analysis of participant semi-structured interviews. DIGITAL HEALTH 2022;8:205520762211237 View
- Damanabi S, Salimzadeh Z, Kalankesh L, Shaafi S, Ferdousi R. Exploring Self-management Needs of Persons With Multiple Sclerosis: A Qualitative Study for Mobile Application Development. International Journal of MS Care 2022;24(1):1 View
- Alonso R, Chertcoff A, Eizaguirre M, Bauer J, Leguizamón F, Curbello M, Cassará F, Garcea O, Carrá A, Palma A, Silva B. Decision making process in multiple sclerosis: An Argentine pilot study. Multiple Sclerosis and Related Disorders 2022;61:103751 View
- Freund M, Schiffmann I, Rahn A, Chard D, Lukas C, Scheiderbauer J, Sippel A, Heesen C. Understanding Magnetic Resonance Imaging in Multiple Sclerosis (UMIMS): Development and Piloting of an Online Education Program About Magnetic Resonance Imaging for People With Multiple Sclerosis. Frontiers in Neurology 2022;13 View
- Sippel A, Riemann-Lorenz K, Pöttgen J, Wiedemann R, Drixler K, Bitzer E, Holmberg C, Lezius S, Heesen C. Validation of the German eHealth impact questionnaire for online health information users affected by multiple sclerosis. BMC Medical Informatics and Decision Making 2022;22(1) View
- Castillo-Triviño T, Gómez-Ballesteros R, Borges M, Martín-Martínez J, Sotoca J, Alonso A, Caminero A, Borrega L, Sánchez-Menoyo J, Barrero-Hernández F, Calles C, Brieva L, Blasco-Quílez M, García-Soto J, del Campo-Amigo M, Navarro-Cantó L, Agüera E, Garcés-Redondo M, Carmona O, Gabaldón-Torres L, Forero L, Hervás M, Mauriño J, Sainz de la Maza S. Long-term prognosis communication preferences in early-stage relapsing-remitting multiple sclerosis. Multiple Sclerosis and Related Disorders 2022;64:103969 View
- Neate S, Bevens W, Jelinek P, Gray K, Weiland T, Nag N, Simpson-Yap S, Jelinek G, Yu M, Reece J. A multiple sclerosis lifestyle behavior online course: Qualitative analysis of participants' motivations, expectations and experiences. Frontiers in Public Health 2022;10 View
- Newsome S, Binns C, Kaunzner U, Morgan S, Halper J. No Evidence of Disease Activity (NEDA) as a Clinical Assessment Tool for Multiple Sclerosis: Clinician and Patient Perspectives [Narrative Review]. Neurology and Therapy 2023;12(6):1909 View
- Kutzinski M, Krause N, Riemann-Lorenz K, Meyer B, Heesen C. Acceptability of a digital health application to empower persons with multiple sclerosis with moderate to severe disability: single-arm prospective pilot study. BMC Neurology 2023;23(1) View
- Bevens W, Davenport R, Neate S, Yu M, Jelinek P, Jelinek G, Reece J. Web-Based Health Information Seeking by People Living With Multiple Sclerosis: Qualitative Investigation of the Multiple Sclerosis Online Course. Journal of Medical Internet Research 2024;26:e53372 View
- Smith E, Langdon D. A systematic review to explore patients’ MS knowledge and MS risk knowledge. Neurological Sciences 2024;45(9):4185 View
Books/Policy Documents
- King H, Slattery D. Research Anthology on Diagnosing and Treating Neurocognitive Disorders. View
- King H, Slattery D. Impacts of Information Technology on Patient Care and Empowerment. View
- Filippini G, Clerico M, Beiki O, Mattoscio M, Piazza F, Del Giovane C, Fredrikson S, Tramacere I, Scalfari A, Filippini G. Cochrane Database of Systematic Reviews. View