This paper is in the following e-collection/theme issue:

Digital Health, Telehealth and e-Innovation in Clinical Settings (401) Neurology and Neurosciences (185) Adoption and Change Management of eHealth Systems (712) Electronic Health Records (1053) eHealth Infrastructures (345)

Published on in Vol 5, No 1 (2016): Jan-Mar

Designing an Electronic Patient Management System for Multiple Sclerosis: Building a Next Generation Multiple Sclerosis Documentation System

Designing an Electronic Patient Management System for Multiple Sclerosis: Building a Next Generation Multiple Sclerosis Documentation System

Designing an Electronic Patient Management System for Multiple Sclerosis: Building a Next Generation Multiple Sclerosis Documentation System

Authors of this article:

Raimar Kern1 Author Orcid Image ;   Rocco Haase1 Author Orcid Image ;   Judith Christina Eisele1 Author Orcid Image ;   Katja Thomas1 Author Orcid Image ;   Tjalf Ziemssen1 Author Orcid Image
Article Authors Cited by (38) Tweetations (8) Metrics

Journals

  1. Ziemssen T, Kern R, Cornelissen C. Study design of PANGAEA 2.0, a non-interventional study on RRMS patients to be switched to fingolimod. BMC Neurology 2016;16(1) View
  2. Marziniak M, Brichetto G, Feys P, Meyding-Lamadé U, Vernon K, Meuth S. The Use of Digital and Remote Communication Technologies as a Tool for Multiple Sclerosis Management: Narrative Review. JMIR Rehabilitation and Assistive Technologies 2018;5(1):e5 View
  3. Peeters L. Fair data for next-generation management of multiple sclerosis. Multiple Sclerosis Journal 2018;24(9):1151 View
  4. Dirks P, Zingler V, Leemhuis J, Berthold H, Hieke-Schulz S, Wormser D, Ziemssen T. Design of a non-interventional post-marketing study to assess the long-term safety and effectiveness of ocrelizumab in German real world multiple sclerosis cohorts – the CONFIDENCE study protocol. BMC Neurology 2020;20(1) View
  5. Ziemssen T, Thomas K. Alemtuzumab in the long-term treatment of relapsing-remitting multiple sclerosis: an update on the clinical trial evidence and data from the real world. Therapeutic Advances in Neurological Disorders 2017;10(10):343 View
  6. Ziemssen T, Thomas K. Treatment optimization in multiple sclerosis: how do we apply emerging evidence?. Expert Review of Clinical Immunology 2017;13(6):509 View
  7. D'Amico E, Haase R, Ziemssen T. Review: Patient-reported outcomes in multiple sclerosis care. Multiple Sclerosis and Related Disorders 2019;33:61 View
  8. Ziemssen T, Hoffmann O, Klotz L, Schreiber H, Weber M, Rauser B. Gaining First Insights on Secondary Progressive Multiple Sclerosis Patients Treated With Siponimod in Clinical Routine: Protocol of the Noninterventional Study AMASIA. JMIR Research Protocols 2020;9(7):e19598 View
  9. Haase R, Wunderlich M, Dillenseger A, Kern R, Akgün K, Ziemssen T. Improving multiple sclerosis management and collecting safety information in the real world: the MSDS3D software approach. Expert Opinion on Drug Safety 2018;17(4):369 View
  10. Holderried M, Hoeper A, Holderried F, Blumenstock G, Ernst C, Tropitzsch A. Attitudes Toward e-Health: The Otolaryngologists' Point of View. Telemedicine and e-Health 2018;24(6):425 View
  11. Moghaddasi H, Rabiei R, Asadi F, Ostvan N. Evaluation of Nursing Information Systems: Application of Usability Aspects in the Development of Systems. Healthcare Informatics Research 2017;23(2):101 View
  12. Yeroushalmi S, Maloni H, Costello K, Wallin M. Telemedicine and multiple sclerosis: A comprehensive literature review. Journal of Telemedicine and Telecare 2020;26(7-8):400 View
  13. Ziemssen T, Engelmann U, Jahn S, Leptich A, Kern R, Hassoun L, Thomas K. Rationale, design, and methods of a non-interventional study to establish safety, effectiveness, quality of life, cognition, health-related and work capacity data on Alemtuzumab in multiple sclerosis patients in Germany (TREAT-MS). BMC Neurology 2016;16(1) View
  14. Lavorgna L, Brigo F, Moccia M, Leocani L, Lanzillo R, Clerico M, Abbadessa G, Schmierer K, Solaro C, Prosperini L, Tedeschi G, Giovannoni G, Bonavita S. e-Health and multiple sclerosis: An update. Multiple Sclerosis Journal 2018;24(13):1657 View
  15. Heesen C, Haase R, Melzig S, Poettgen J, Berghoff M, Paul F, Zettl U, Marziniak M, Angstwurm K, Kern R, Ziemssen T, Stellmann J. Perceptions on the value of bodily functions in multiple sclerosis. Acta Neurologica Scandinavica 2018;137(3):356 View
  16. Ziemssen T, Kern R, Voigt I, Haase R. Data Collection in Multiple Sclerosis: The MSDS Approach. Frontiers in Neurology 2020;11 View
  17. Voigt I, Benedict M, Susky M, Scheplitz T, Frankowitz S, Kern R, Müller O, Schlieter H, Ziemssen T. A Digital Patient Portal for Patients With Multiple Sclerosis. Frontiers in Neurology 2020;11 View
  18. D'Haeseleer M, Eelen P, Sadeghi N, D'Hooghe M, Van Schependom J, Nagels G. Feasibility of Real Time Internet-Based Teleconsultation in Patients With Multiple Sclerosis: Interventional Pilot Study. Journal of Medical Internet Research 2020;22(8):e18178 View
  19. Corvino F, Oliveri D, Phillips A. The association of timing of disease-modifying drug initiation and relapse in patients with multiple sclerosis using electronic health records. Current Medical Research and Opinion 2017;33(6):1127 View
  20. Ziemssen T, Hillert J, Butzkueven H. The importance of collecting structured clinical information on multiple sclerosis. BMC Medicine 2016;14(1) View
  21. Ziemssen T, Kern R, Thomas K. Multiple sclerosis: clinical profiling and data collection as prerequisite for personalized medicine approach. BMC Neurology 2016;16(1) View
  22. Haase R, Schriefer D, Ziemssen T. Der Patient als Experte. DNP - Der Neurologe & Psychiater 2020;21(5):33 View
  23. Scholz M, Haase R, Schriefer D, Voigt I, Ziemssen T. Electronic Health Interventions in the Case of Multiple Sclerosis: From Theory to Practice. Brain Sciences 2021;11(2):180 View
  24. Pratap A, Grant D, Vegesna A, Tummalacherla M, Cohan S, Deshpande C, Mangravite L, Omberg L. Evaluating the Utility of Smartphone-Based Sensor Assessments in Persons With Multiple Sclerosis in the Real-World Using an App (elevateMS): Observational, Prospective Pilot Digital Health Study. JMIR mHealth and uHealth 2020;8(10):e22108 View
  25. Lavorgna L, Brigo F, Esposito S, Abbadessa G, Sparaco M, Lanzillo R, Moccia M, Inglese M, Bonfanti L, Trojsi F, Spina E, Russo A, De Micco P, Clerico M, Tedeschi G, Bonavita S. Public Engagement and Neurology: An Update. Brain Sciences 2021;11(4):429 View
  26. Lang M, Rau D, Cepek L, Cürten F, Ringbauer S, Mayr M. An ID-Associated Application to Facilitate Patient-Tailored Management of Multiple Sclerosis. Brain Sciences 2021;11(8):1061 View
  27. Wang J, Tao Q, An Y, Lu J, Gu X, Wang C. Intelligent OPC Building Information Management System Based on IoT. Journal of Physics: Conference Series 2021;2143(1):012007 View
  28. Ghiani M, Zhuleku E, Dillenseger A, Maywald U, Fuchs A, Wilke T, Ziemssen T. Data Resource Profile: The Multiple Sclerosis Documentation System 3D and AOK PLUS Linked Database (MSDS-AOK PLUS). Journal of Clinical Medicine 2023;12(4):1441 View
  29. Ed‐driouch C, Chéneau F, Simon F, Pasquier G, Combès B, Kerbrat A, Le Page E, Limou S, Vince N, Laplaud D, Mars F, Dumas C, Edan G, Gourraud P. Multiple sclerosis clinical decision support system based on projection to reference datasets. Annals of Clinical and Translational Neurology 2022;9(12):1863 View
  30. Dillenseger A, Weidemann M, Trentzsch K, Inojosa H, Haase R, Schriefer D, Voigt I, Scholz M, Akgün K, Ziemssen T. Digital Biomarkers in Multiple Sclerosis. Brain Sciences 2021;11(11):1519 View
  31. Swetlik C, Bove R, McGinley M. Clinical and Research Applications of the Electronic Medical Record in Multiple Sclerosis: A Narrative Review of Current Uses and Future Applications. International Journal of MS Care 2022;24(6):287 View
  32. Haase R, Voigt I, Scholz M, Schlieter H, Benedict M, Susky M, Dillenseger A, Ziemssen T. Profiles of eHealth Adoption in Persons with Multiple Sclerosis and Their Caregivers. Brain Sciences 2021;11(8):1087 View
  33. Lang M, Cepek L, Rau D, Denkinger N, Behrens K, Kornhuber A. Steigerung der Therapietreue durch niederschwellige Kontakte. Nervenheilkunde 2022;41(07/08):497 View
  34. Romagnoli A, Zovi A, Sabbatucci M, Ferrara F, Vitiello A. Therapeutic innovation and digital therapies in the world: Comparison between the American and European regulatory framework, with focus on Italy. Journal of Interprofessional Education & Practice 2023;32:100656 View
  35. Romagnoli A, Valentino F, Zovi A, Caprodossi A, Vitiello A, Ferrara F. The Development of Digital Therapies as a New Therapeutic Option to Treat Diseases: Focus on the International Regulatory Framework. Journal of Pharmaceutical Innovation 2023;18(4):2447 View
  36. Muros-Le Rouzic E, Ghiani M, Zhuleku E, Dillenseger A, Maywald U, Wilke T, Ziemssen T, Craveiro L. Claims-based algorithm to estimate the Expanded Disability Status Scale for multiple sclerosis in a German health insurance fund: a validation study using patient medical records. Frontiers in Neurology 2023;14 View
  37. Seo D, So J, Kim J, Jung H, Jang I, Kim H, Kang D, Lim Y, Choi J, Lee E. Digital symbol-digit modalities test with modified flexible protocols in patients with CNS demyelinating diseases. Scientific Reports 2024;14(1) View

Books/Policy Documents

  1. . Multiple Sklerose. View