This paper is in the following e-collection/theme issue:

Information Quality in Digital Media (340)

Published on in Vol 5, No 3 (2016): Jul-Sept

Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases

Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases

Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases

Authors of this article:

Frédéric Pauer1 Author Orcid Image ;   Jens Göbel2 Author Orcid Image ;   Holger Storf2 Author Orcid Image ;   Svenja Litzkendorf1 Author Orcid Image ;   Ana Babac1 Author Orcid Image ;   Martin Frank3 Author Orcid Image ;   Verena Lührs3 Author Orcid Image ;   Franziska Schauer4 Author Orcid Image ;   Jörg Schmidtke5 Author Orcid Image ;   Lisa Biehl6 Author Orcid Image ;   Thomas OF Wagner7 Author Orcid Image ;   Frank Ückert8 Author Orcid Image ;   Johann-Matthias Graf von der Schulenburg1 Author Orcid Image ;   Tobias Hartz3 Author Orcid Image
Article Authors Cited by (14) Tweetations (3) Metrics

Journals

  1. Babac A, Litzkendorf S, Schmidt K, Pauer F, Damm K, Frank M, Graf von der Schulenburg J. Shaping an Effective Health Information Website on Rare Diseases Using a Group Decision-Making Tool: Inclusion of the Perspectives of Patients, Their Family Members, and Physicians. Interactive Journal of Medical Research 2017;6(2):e23 View
  2. Loda T, Erschens R, Junne F, Stengel A, Zipfel S, Herrmann-Werner A. Undergraduate Medical Students’ Search for Health Information Online: Explanatory Cross-Sectional Study. JMIR Medical Informatics 2020;8(3):e16279 View
  3. Davaris M, Barnett S, Abouassaly R, Lawrentschuk N. Thoracic Surgery Information on the Internet: A Multilingual Quality Assessment. Interactive Journal of Medical Research 2017;6(1):e5 View
  4. Litzkendorf S, Hartz T, Göbel J, Storf H, Pauer F, Babac A, Lührs V, Bruckner-Tuderman L, Schauer F, Schmidtke J, Biehl L, Wagner T, Graf von der Schulenburg J, Frank M. Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study. JMIR Research Protocols 2018;7(5):e112 View
  5. Babac A, von Friedrichs V, Litzkendorf S, Zeidler J, Damm K, Graf von der Schulenburg J. Integrating patient perspectives in medical decision-making: a qualitative interview study examining potentials within the rare disease information exchange process in practice. BMC Medical Informatics and Decision Making 2019;19(1) View
  6. Pauer F, Litzkendorf S, Göbel J, Storf H, Zeidler J, Graf von der Schulenburg J. Rare Diseases on the Internet: An Assessment of the Quality of Online Information. Journal of Medical Internet Research 2017;19(1):e23 View
  7. Bleyer A, Kidd K, Robins V, Martin L, Taylor A, Santi A, Tsoumas G, Hunt A, Swain E, Abbas M, Akinbola E, Vidya S, Moossavi S, Bleyer A, Živná M, Hartmannová H, Hodaňová K, Vyleťal P, Votruba M, Harden M, Blumenstiel B, Greka A, Kmoch S. Outcomes of patient self-referral for the diagnosis of several rare inherited kidney diseases. Genetics in Medicine 2020;22(1):142 View
  8. Litzkendorf S, Pauer F, Zeidler J, Göbel J, Storf H, Graf von der Schulenburg J. Zentrales Informationsportal über seltene Erkrankungen. Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz 2017;60(5):494 View
  9. Viola C, Toma P, Manta F, Benvenuto M. The more you know, the better you act? Institutional communication in Covid-19 crisis management. Technological Forecasting and Social Change 2021;170:120929 View
  10. Văidean V, Achim M. When more is less: Do information and communication technologies (ICTs) improve health outcomes? An empirical investigation in a non-linear framework. Socio-Economic Planning Sciences 2022;80:101218 View

Books/Policy Documents

  1. Sharma N, Kaushik I, Bhushan B, Gautam S, Khamparia A. Deep Learning Strategies for Security Enhancement in Wireless Sensor Networks. View
  2. Sharma N, Kaushik I, Bhushan B, Gautam S, Khamparia A. Research Anthology on Securing Medical Systems and Records. View