This paper is in the following e-collection/theme issue:

Crowdfunding (13)

Published on in Vol 7, No 1 (2018): Jan-Jun

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/7176, first published .
Engaging a Community for Rare Genetic Disease: Best Practices and Education From Individual Crowdfunding Campaigns

Engaging a Community for Rare Genetic Disease: Best Practices and Education From Individual Crowdfunding Campaigns

Engaging a Community for Rare Genetic Disease: Best Practices and Education From Individual Crowdfunding Campaigns

Authors of this article:

Romina Alicia Ortiz1 Author Orcid Image ;   Steven Witte1 Author Orcid Image ;   Arvin Gouw1 Author Orcid Image ;   Ana Sanfilippo1 Author Orcid Image ;   Richard Tsai1 Author Orcid Image ;   Danielle Fumagalli1 Author Orcid Image ;   Christine Yu1 Author Orcid Image ;   Karla Lant1 Author Orcid Image ;   Nicole Lipintz1 Author Orcid Image ;   Jennifer Shepphird1 Author Orcid Image ;   Fidelia B Alvina1 Author Orcid Image ;   Jimmy Cheng-Ho Lin1 Author Orcid Image
Article Authors Cited by (11) Tweetations Metrics

Journals

  1. Dijkstra S, Kok G, Ledford J, Sandalova E, Stevelink R. Possibilities and Pitfalls of Social Media for Translational Medicine. Frontiers in Medicine 2018;5 View
  2. De Castro M, Turner C, Kirmse B, Ferreira C. Practical recommendations for the transition to adulthood for the adolescent with a genetic diagnosis. Special emphasis on inborn errors of metabolism. Translational Science of Rare Diseases 2020;4(3-4):159 View
  3. Kenworthy N, Dong Z, Montgomery A, Fuller E, Berliner L, Zhao J. A cross-sectional study of social inequities in medical crowdfunding campaigns in the United States. PLOS ONE 2020;15(3):e0229760 View
  4. Lublóy Á. Medical crowdfunding in a healthcare system with universal coverage: an exploratory study. BMC Public Health 2020;20(1) View
  5. Jalali A, Nyman J, Hamelin-Mitchell E. Fundraising in Education: Road Map to Involving Medical Educators in Fundraising. JMIR Medical Education 2022;8(2):e32597 View
  6. Fan-Osuala O. Effect of Framing and Feedback Levels on Funding and Emotional Support in Medical Crowdfunding. International Journal of Healthcare Information Systems and Informatics 2023;18(1):1 View
  7. Huang H, Yu H, Li W. Assessing the Importance of Content Versus Design for Successful Crowdfunding of Health Education Games: Online Survey Study. JMIR Serious Games 2024;12:e39587 View
  8. Kpokiri E, Sri-Pathmanathan C, Shrestha P, Navaid S, Wiwatpanit T, Wijegunawardana A, Ali Umar M, Jackson D, Alger J, Bohren M, Hoole M, Labarda M, Juban N, Launois P, Tang W, Halpaap B, Tucker J. Crowdfunding for health research: a qualitative evidence synthesis and a pilot programme. BMJ Global Health 2022;7(7):e009110 View
  9. Jalali A, Nyman J, Loeffelholz O, Courtney C. Data-Driven Fundraising: Strategic Plan for Medical Education. JMIR Medical Education 2024;10:e53624 View
  10. Wu Y, Zhang M, Shen Y, Liu N, Li Y. How Do Project Updates Influence Fundraising on Online Medical Crowdfunding Platforms? Examining the Dynamics of Content Updates. IEEE Transactions on Engineering Management 2024;71:9135 View

Books/Policy Documents

  1. Gouw A, Pal L, Varon D, Fumagalli D, Chacko A. Genomics and Clinical Diagnostics. View