This paper is in the following e-collection/theme issue:

Orthopedics (56) Crowdsourcing and Mechanical Turks (93) Patient-Reported Outcome Measures (PROMs) (282)

Published on in Vol 7, No 1 (2018): Jan-Jun

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/9325, first published .
The Patient Perspective on the Impact of Tenosynovial Giant Cell Tumors on Daily Living: Crowdsourcing Study on Physical Function and Quality of Life

The Patient Perspective on the Impact of Tenosynovial Giant Cell Tumors on Daily Living: Crowdsourcing Study on Physical Function and Quality of Life

The Patient Perspective on the Impact of Tenosynovial Giant Cell Tumors on Daily Living: Crowdsourcing Study on Physical Function and Quality of Life

Authors of this article:

Monique Josephine Mastboom1 Author Orcid Image ;   Rosa Planje1 Author Orcid Image ;   Michiel Adreanus van de Sande1 Author Orcid Image
Article Authors Cited by (28) Tweetations (4) Metrics

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  2. Machado V, San-Julián M. Risk factors for early osteoarthritis in tenosynovial giant cell tumour. Revista Española de Cirugía Ortopédica y Traumatología (English Edition) 2020;64(3):199 View
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  5. Zhou L, Parmanto B. Development and Validation of a Comprehensive Well-Being Scale for People in the University Environment (Pitt Wellness Scale) Using a Crowdsourcing Approach: Cross-Sectional Study. Journal of Medical Internet Research 2020;22(4):e15075 View
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  7. Machado V, San-Julián M. Factores de riesgo para artrosis precoz en el tumor de células gigantes tenosinovial. Revista Española de Cirugía Ortopédica y Traumatología 2020;64(3):199 View
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  10. Verspoor F, Mastboom M, Hannink G, van der Graaf W, van de Sande M, Schreuder H. The effect of surgery in tenosynovial giant cell tumours as measured by patient-reported outcomes on quality of life and joint function. The Bone & Joint Journal 2019;101-B(3):272 View
  11. Lin F, Ionescu-Ittu R, Pivneva I, Wynant W, Shi S, Wu E, Kwong W, Abraham J. The Economic Burden of Tenosynovial Giant Cell Tumors Among Employed Workforce in the United States. Journal of Occupational & Environmental Medicine 2021;63(4):e197 View
  12. Van De Sande M, Tap W, Gelhorn H, Ye X, Speck R, Palmerini E, Stacchiotti S, Desai J, Wagner A, Alcindor T, Ganjoo K, Martín-Broto J, Wang Q, Shuster D, Gelderblom H, Healey J. Pexidartinib improves physical functioning and stiffness in patients with tenosynovial giant cell tumor: results from the ENLIVEN randomized clinical trial. Acta Orthopaedica 2021;92(4):493 View
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  15. Popping S, Kall M, Nichols B, Stempher E, Versteegh L, van de Vijver D, van Sighem A, Versteegh M, Boucher C, Delpech V, Verbon A. Quality of life among people living with HIV in England and the Netherlands: a population-based study. The Lancet Regional Health - Europe 2021;8:100177 View
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  17. Palmerini E, Staals E. Treatment updates on tenosynovial giant cell tumor. Current Opinion in Oncology 2022;34(4):322 View
  18. Stacchiotti S, Dürr H, Schaefer I, Woertler K, Haas R, Trama A, Caraceni A, Bajpai J, Baldi G, Bernthal N, Blay J, Boye K, Broto J, Chen W, Dei Tos P, Desai J, Emhofer S, Eriksson M, Gronchi A, Gelderblom H, Hardes J, Hartmann W, Healey J, Italiano A, Jones R, Kawai A, Leithner A, Loong H, Mascard E, Morosi C, Otten N, Palmerini E, Patel S, Reichardt P, Rubin B, Rutkowski P, Sangalli C, Schuster K, Seddon B, Shkcodra M, Staals E, Tap W, van de Rijn M, van Langevelde K, Vanhoenacker F, Wagner A, Wiltink L, Stern S, Van de Sande M, Bauer S. Best clinical management of tenosynovial giant cell tumour (TGCT): A consensus paper from the community of experts. Cancer Treatment Reviews 2023;112:102491 View
  19. Francisco R, Brasil S, Pascoal C, Jaeken J, Liddle M, Videira P, dos Reis Ferreira V. The road to successful people-centric research in rare diseases: the web-based case study of the Immunology and Congenital Disorders of Glycosylation questionnaire (ImmunoCDGQ). Orphanet Journal of Rare Diseases 2022;17(1) View
  20. Healey J, Tap W, Gelhorn H, Ye X, Speck R, Palmerini E, Stacchiotti S, Desai J, Wagner A, Alcindor T, Ganjoo K, Martín-Broto J, Wang Q, Shuster D, Gelderblom H, van de Sande M. Pexidartinib Provides Modest Pain Relief in Patients With Tenosynovial Giant Cell Tumor: Results From ENLIVEN. Clinical Orthopaedics & Related Research 2023;481(1):107 View
  21. Tap W, Healey J. Role of colony-stimulating factor 1 in the neoplastic process of tenosynovial giant cell tumor. Tumor Biology 2022;44(1):239 View
  22. Monticelli M, Francisco R, Brasil S, Marques-da-Silva D, Rijoff T, Pascoal C, Jaeken J, Videira P, dos Reis Ferreira V. Stakeholders’ views on drug development: the congenital disorders of glycosylation community perspective. Orphanet Journal of Rare Diseases 2022;17(1) View
  23. Lin F, Wilson K, Kwong W, Abraham J. Understanding the Effect of Osteoarthritis on Surgical Treatment Patterns, Healthcare Resource Utilization, and Costs Among Patients With Tenosynovial Giant Cell Tumors. JAAOS: Global Research and Reviews 2023;7(5) View
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  27. Dharmani C, Fofah O, Wang E, Salas M, Wooddell M, Tu N, Tse J, Near A, Tinoco G. Real-world drug utilization and treatment patterns in patients with tenosynovial giant cell tumors in the USA. Future Oncology 2024;20(16):1079 View
  28. Gelderblom H, Bhadri V, Stacchiotti S, Bauer S, Wagner A, van de Sande M, Bernthal N, López Pousa A, Razak A, Italiano A, Ahmed M, Le Cesne A, Tinoco G, Boye K, Martín-Broto J, Palmerini E, Tafuto S, Pratap S, Powers B, Reichardt P, Casado Herráez A, Rutkowski P, Tait C, Zarins F, Harrow B, Sharma M, Ruiz-Soto R, Sherman M, Blay J, Tap W, Loong H, Brunello A, Krieg A, Algulnik M, Riedel R, Okuno S, Loggers E, Alcindor T, Ferraresi V, Serrano C, Randall R, Wilky B, Ravi V. Vimseltinib versus placebo for tenosynovial giant cell tumour (MOTION): a multicentre, randomised, double-blind, placebo-controlled, phase 3 trial. The Lancet 2024;403(10445):2709 View