This paper is in the following e-collection/theme issue:

Reviews (133) Digital Health, Telehealth and e-Innovation in Clinical Settings (556) Health Information Exchange (146) Email Communication, Web-Based Communication, Secure Messaging (191) Knowledge Translation and Implementation Science (513) Participatory Medicine & E-Patients (872) Patient Engagement and Empowerment (105)

Published on in Vol 14 (2025)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/65606, first published .
Developing Requirements for a Standardized System to Return Individual Research Results Back to Study Participants: Narrative Review

Developing Requirements for a Standardized System to Return Individual Research Results Back to Study Participants: Narrative Review

Developing Requirements for a Standardized System to Return Individual Research Results Back to Study Participants: Narrative Review

Authors of this article:

Rosalyn Leigh Carr1, 2 Author Orcid Image ;   Vita Chan2, 3 Author Orcid Image ;   Nicholas C West2 Author Orcid Image ;   Matthias Görges2, 4 Author Orcid Image
Article Authors Cited by Tweetations Metrics

Rosalyn Leigh Carr   1, 2 , BASc ;   Vita Chan   2, 3 , MLIS ;   Nicholas C West   2 , MSc ;   Matthias Görges   2, 4 , PhD

1 The School of Biomedical Engineering, University of British Columbia, Vancouver, BC, Canada

2 Research Institute, BC Children's Hospital, Vancouver, BC, Canada

3 School of Information, University of British Columbia, Vancouver, BC, Canada

4 Department of Anesthesiology, Pharmacology and Therapeutics, University of British Columbia, Vancouver, BC, Canada

Corresponding Author:

  • Rosalyn Leigh Carr, BASc
  • The School of Biomedical Engineering
  • University of British Columbia
  • 6088 University Boulevard
  • Vancouver, BC V6T 1Z3
  • Canada
  • Phone: 1 6048227810
  • Email: rosalyn.carr@bcchr.ca